Jesy Nelson is thought to be heading to 10 Downing Street to raise awareness about the genetic condition afflicting her twins.
Jesy Nelson is thought to be heading to 10 Downing Street to raise awareness about the genetic condition afflicting her twins
The former Little Mix singer, 34, made the announcement by posing in front of a set of merchandise linked to the band on Monday (20.04.26) evening – a day after she revealed her £100,000 car containing life-saving hospital equipment for her twin daughters has been stolen from outside her home.
Jesy captioned the snap, which showed her dressed in a grey trouser suit: “She’s off to Number 10 Downing Street.”
While she did not confirm what the visit is for, a number of fans posted it was to continue her mission to raise awareness about her daughters’ medical condition.
The singer gave birth to her daughters Ocean Jade and Story Monroe in May last year following a high-risk pregnancy.
It took until January for them to be diagnosed with spinal muscular atrophy type 1, and the late diagnosis of the neuromuscular disorder means they may never walk.
Some children with the condition need machines to help them breathe and to feed them, and Jesy has relentlessly campaigned for awareness of the condition since her shock.
Together with the Daily Mirror and charity SMA UK, Jesy launched a campaign in February for all newborn babies to get a £5 test so they can be given new treatments which are effectively a cure if they are administered soon after birth.
Health Secretary Wes Streeting agreed to bring forward a planned trial of the programme from January 2027 to October this year, and it is thought this is what Jesy is going to Downing Street to discuss.
Around 404,000 babies will be tested in the phased rollout in England.
However, 163,000 will be excluded to act as a control group.
Jesy criticised the decision at the time, hitting out: “It’s like literally a postcode lottery.”
Jesy told fans on Sunday (19.04.26) her £100,000 car containing life-saving hospital equipment for her twin daughters has been stolen from outside her home.
She said in a social media video the vehicle was taken from her driveway in Brentwood, Essex, in the early hours of the morning.
Jesy used her clip to share details of the theft including the registration plate of her car as she pleaded for the public’s help in locating it.
She said: “My car got stolen off of my driveway in the early hours of this morning. If anyone sees a black defender Reg plate JJ73SSY… please, if any of you have seen or know of any information can you DM me or contact the police.”
Jesy added: “I have so much of my girls’ hospital equipment in that car that’s really needed.”
The singer is currently filming a spin-off of her Amazon Prime series focusing on her daughters’ diagnosis and their treatment.
The project is also expected to document the breakdown of her relationship with Zion Foster, with whom she shares her children.
The pair ended their relationship after four years together, several months after becoming engaged.
Earlier this year, Jesy spoke about co-parenting with Zion.
She said: “We’re doing good, we’re doing good. It’s been tough. I’m not going to bulls*** you. It’s been really tough. And I think that’s understandable with everything that we’ve gone through.
“But we’re just cracking on and we’re getting on with it and our girls are our focus. They’re happy and they’re doing really well and that’s all we can ask for as their parents.”
Jesy rose to fame as a member of Little Mix after winning The X Factor in 2011.
She later launched a solo career, releasing music and documentaries while remaining a prominent figure in British pop culture.
